Sunday, November 20, 2016

"Jake's" Widespread Crohn's Disease Gone Thanks To FMT! 20 November 2013

It's been a while since I posted about my son "Jake".  For those who haven't read his story, here is the link . He has been off medication (Imuran) for nine months now and looks and feels well.  Unfortunately his cousin who was his donor became unsuitable to donate in mid August due to picking up a parasite, so Jake has gone since then without any FMT.

Today he had a colonoscopy and endoscopy and we were thrilled with the news.  There is no sign of Crohn's Disease anywhere - not in his intestines, not in his terminal ileum and not in his duodenum!!! In fact, Professor Borody said there was no scarring or ulceration or any indication that the disease had ever existed.  It was all perfect, healthy and inflammation-free.  When he was first diagnosed with Crohn's three years ago it was very widespread.  I am sure that anyone reading who has any experience or understanding of Crohn's Disease will appreciate just how incredible this is!  The persistence has paid off.

It's still too early to say that this is a cure - only time will tell that, but his remission is not just clinical, it's visible and histological remission with no medication.  This has completely defied the "odds" so far.  It's the miracle we prayed for and it is Jake's wish and mine that this will give hope to others with this terrible disease.

I am one very, very happy mother!  What an absolute "legend" of a doctor Professor Borody is!!

Oh and by the way, Jake's skin is still clear - his acne never returned :-)